She tends to refuse help from most doctors, or at least, the preventative care required to avoid problems from getting worse. Though some people may live for several years, your friends doctors will have a better idea on what things look like in her individual case, based on the type of cancer, where it is and how aggressive it is, and the response to treatments. An unusual case is described of a 64‐year‐old woman with a remote history of breast cancer whose first non‐nodal metastasis was discovered on a routine Pap test. Press question mark to learn the rest of the keyboard shortcuts, Stage 4B Lymphoma - Transformed NHLPL/DLBCL. She is kind and caring, and incredibly selfless with her children. Otherwise she is on an oral hormone, and oral hydromorph twice a day. Aside from losing too much weight, the doctor doesn't seem concerned. Can birth control pills cause cancer? As metastatic breast cancer testing approaches continue to expand, new and promising treatments have emerged. Metastatic breast cancer occurs when breast cancer cells detach from the original tumor and travel through the lymphatic system or the blood to other parts of the body. She was diagnosed with stage 4, with limited options for treatment aside from pain control a hormone-blocking drug to slow the growth of the cancer cells. That week was littered with scans, new doctors, and hours of driving to Newmarket to begin talking treatment plan. And there's no guarantee it will help. Reddit; Wechat; Abstract. She has never had cancer before nor did she experience any symptoms. Archived. It’s when the disease spreads, or metastasizes, that it often turns lethal. My mom is very good a hiding her symptoms/how she is really feeling/acting when the doctor calls. Chemotherapy plays an important role in the management of metastatic breast cancer. For any other decision it doesn't really help or mean anything because they lump all the different types of cancer together and there are many different types of breast cancer and the statistics don't yet include the latest drugs, etc etc. Background. Reddit; Wechat; Abstract. Someone I know under 30 has been diagnosed with metastatic breast cancer. "We are seeing improvements in how long people are living. The unknown is killing me. As I am her legal caregiver, my only option was to have her move with me to QC as she has no one else to assist, and I had already signed my mortgage prior to her diagnosis. For some people (me) metastatic breast cancer is more like a chronic illness than a death sentence. I'm sorry to hear about her diagnosis. Single‐agent sequential chemotherapy with anthracycline or taxane has remained the cornerstone of treatment for many years. BRCA2, Rad Onc / Palliative Care - comments are not medical advice. I just need encouragement and hope. The palliative care doctor doesn't speak much to me, and I wish she would as I need the support. While there is no cure for metastatic breast cancer, there are treatments that slow the cancer, extending the patient’s life while also improving the quality of life, Henry says. Press question mark to learn the rest of the keyboard shortcuts. The most common treatments for metastatic breast cancer in any location (bone, brain, lung, or liver) are systemic medications, which … Yes. Reddit; Wechat; ABSTRACT. She did a wonderful job given the circumstances, and when my parents inevitably divorced, I chose to stay with her full time. Starting your periods early can be another increased risk. Not much help, I know, but it's all I can offer. I can't understand how this could happen. Chemotherapy plays an important role in the management of metastatic breast cancer. Sending you all my love and vibes. I hesitate to even write here that I have no problems with it at all. I am a 26-year-old originally from Ontario, Canada, recently moved to Quebec with my boyfriend and mother in tow. Reddit; Wechat; Abstract. I don't want to sound smug). None of her doctors will give us a time frame, but my research shows that that cancer in the lining of her brain is an end-stage progression, and we most likely will not see more than a year. Please read. Can cancer be detected in a blood test? User account menu. It was a shock diagnosis, but not really at the same time. Thank you for your response and kindness. It wouldn't cause the cancer, so much as feed it. Blood tests don't detect the cancer but sometimes advanced cancer can cause regular tests to be a bit off. In 2011 cancer was found in my liver, which means it is Stage IV, and with breast cancer, not survivable. Hi! Metastatic breast cancer is the most advanced stage of breast cancer, also popularly referred to as breast cancer stage IV.There are five stages of breast cancer from step 0 where the breast cancer cells have not affected the lymph nodes. Her doctors, on the other hand, seem to believe that if she just stays in a positive mindset, she could see 2-10 years. Many with stage IV breast cancer also benefit from some type of chemotherapy and some do live years. Trying to cope with the diagnoses, and the harsh reality of losing my mom before she gets to see me get married or have children is crushing, but the unknown of what to look for, when to put her in hospice, and who to talk to makes it much worse. That she is confused, not wanting to eat, can't function well on her own, and sleeps so much, all tend to be signs that someone doesn't have much longer to live, especially without treatment. I am a 26-year-old originally from Ontario, Canada, recently moved to Quebec with my boyfriend and mother in tow. The Pap test was supported by the results of cervical and endometrial biopsies. A Case Report of Male Occult Breast Cancer First Manifesting as Axillary Lymph Node Metastasis With Part of Metastatic Mucinous Carcinoma . My mom doesn't seem to know much about her diagnoses or care other than the fact that she is upset nobody has given her a timeline. If detected early, breast cancer can be controlled. Has the palliative care doctor given any opinion on how he thinks your mom is doing? Breast Cancer (Recurrent or Metastatic) Treatment Regimens. Thank you for your response. They tend to have a lot of experience with sick people, and maybe they could give you a better understanding of just what to expect from here. Tumor heterogeneity was associated with treatment outcome of metastatic cancers but few studies have examined whether tumor heterogeneity in circulating tumor DNA (ctDNA) can be used to predict treatment outcome. Chemo will often slow the growth of the cancer (even if it isn't curable) and certainly can make some improvements, but remember it comes with a lot of side effects that can make her fatigue, nausea, appetite, and weakness all worse. Has spread to my bones (all over my skeleton) and skin. Holley was diagnosed with stage III breast cancer in 2012. In recent days, she is very forgetful and confused, she has lost over 60 pounds, she sleeps 12-18 hours a day, gets sick after most meals or snacks, and is so weak she can barely make it up the stairs. The reason I bring this up is that I almost felt caring for her in this sense would be my inevitable future, and I feel as though I grieved the women my mother once was, many years ago. Metastatic breast cancer is the most frequent cause of cancer death for women worldwide. Had no previous cancer diagnosis. We have got a 2nd opinion and we have checked and the cancer has spread everywhere. With metastatic breast cancer, the median survival rate is only two to three years, Mertz said. Reddit; Wechat; Abstract. Reddit; Wechat; Abstract. I am a 34 yr old female diagnosed with breast cancer about a week ago (TNBC). You're right, it's rare, and it's worrisome. I held the move off as long as possible, to ensure she could benefit from as much treatment in ON as possible before we got here. Chemoresistance, the major obstacle in breast cancer chemotherapy, results in unnecessary chemotherapy and wasting of medical resources. 9. I feel lost. Each patient's situation is unique regardless of what stats say. Background. New agents for the palliative treatment of metastatic breast cancer have emerged in the 1990s. I'm a woman living with Terminal, Metastatic Breast Cancer to the liver. A few years ago (maybe about 4-5 years) my grandma (70) had breast cancer, and then fought it. This reddit is for the discussion of cancer, cancer related news, stories of survival, stories of loss and everything else associated with the disease. If the cancer is hormone related then the pill may have increased the risk of cancer. But that isn't always what every patient needs or wants. Reddit; Wechat; Abstract. EDIT: Also, you can drink soda while you're on chemo. Today I had my first appointment with the oncologist who, contingent on the results of additional tests, has recommended … In 2009 I was diagnosed with Stage II breast cancer. Plus they don't give you ANY insight into how an individual cancer will react. Dr. Lisa Flaum shares information on recently approved treatment options and the role of genetic markers in accessing targeted therapy. Posted by 7 months ago. Reddit; Wechat; Abstract. It’s in both breasts. Press J to jump to the feed. You are going through a lot right now, remember to be kind and patient with yourself, ask for help from those around you and be willing to accept kindness is the only advice I can give you. She was given access to a palliative care doctor to help manage her pain, which to say the least, I have not been impressed with. AMA. DNA was extracted from 3831 consecutive MBCs: 1237 (ER pos /HER2 neg), 1953 ER neg /HER2 amp, and 641 triple‐negative breast cancer … Have you been able to talk to your mother about what she thinks about her diagnosis and the treatment options? I would love to get a second opinion also, but she isn't too interested in seeing more doctors which makes it so hard. Metastatic Breast Cancer. It was a shock diagnosis, but not really at the same time. We examined a large dataset of female metastatic breast cancers (MBCs) profiled with comprehensive genomic profiling (CGP) to identify the prevalence and distribution of immunotherapy responsiveness‐associated biomarkers. Basically having cancer doesn't make your death anymore certain than anyone else. Major illness has a way of overturning your life in an instant even if it isn't you that is sick. Can stage 4 be controlled? You may feel angry, scared, stressed, outraged, and depressed. Seems unlikely to have made much difference given her young age. 4, 5 Such time costs can be substantial, with a previous study estimating 270 hours spent on breast cancer‐related care in the final year of life. Good on you for doing the research. Thank you for the well wishes, everything helps. This sucks. I’m hormone positive and her2-, and it’s invasive ductal carcinoma. But can she have a long and normal life? We have got a 2nd opinion and we have checked and the cancer has spread everywhere. Metastatic breast cancer. In terms of treatment options, the oncologists are not being aggressive really. The cells have not formed tumors and … Upon diagnosis, we had a rough initial week. There is nothing that she did that caused this a terrible disease. 1 Metastatic breast cancer (MBC) remains an incurable disease with an estimated 5‐year survival of only 25%. The anthracyclines (doxorubicin, epirubicin) and the taxanes (paclitaxel, docetaxel) are considered the most active agents for patients with advanced breast cancer. I will stop now. I spent the past few weeks learning everything I could and I know it's rare even for older people to be diagnosed first with metastatic breast cancer and I'm astonished at how low the survival rates are. ctDNA analysis was performed in 37 HER2‐positive metastatic breast cancer patients treated with pyrotinib. I'm sorry to hear about your mother. From what I know and in my experience as an ER doctor, the more reliable indicators that someone doesn't have long to live are related to how they are managing in life compared to normal. Several years ago, the Metastatic Breast Cancer Alliance did a study that found that of all research grants, financed by significant public and private sources from 2006-2013, just 7% of funds studied metastatic breast cancer, even though metastasis is the thing that causes breast cancer to become dangerous disease. Holley Kitchen is the “cancer lifer” whose June 4, 2015 video about what it’s like to live with metastatic breast cancer that went viral on Facebook and other media outlets. There isn't one type of cancer. I want to have more faith that it might be ok. Tldr: A recent Contrast CT scan led to the incidental discovery in of liver and breast masses. It’s terrible. I think the stress got to her, and a few days were spent hopping in an ambulance to the hospital as she was in so much pain she could not wait for me to drive her. A metastatic tumor in a different part of the body is made up of cells from the breast cancer. Can it be removed completely? Methods. "Nearly 40,000 women and men die every year, and that number hasn't changed in two decades." Cancer … I had a mastectomy, did 6 rounds of chemo and a year of a drug called herceptin. I can't tell you how many of my (very, very loving) friends and family have done none. 1 Approximately, 25% of patients with MBC developed brain metastasis. Among patients diagnosed with breast cancer, 5%‐10% had primary metastasis, and 20%‐30% would develop into metastatic disease. This study investigated the incidence, radiographic patterns and relevance to clinical outcome of everolimus‐related pneumonitis (ERP) in metastatic breast cancer (MBC) patients. I always imagined my adult life littered with phone calls for advice on my marriage and how to raise my own children right, and then I was hit with this diagnosis. I'm so confused and so worried about her family. Which to me is unrealistic given her condition. If the metastatic breast cancer started as an earlier-stage breast cancer, you can ask whether the cancer cells should be tested for characteristics such as hormone receptors and HER2 receptors in case they are different from the primary breast cancer. You just don't know what will happen with cancer. My mother raised me and my brother as a mostly single parent. I do get sick of tired of having to educate them, but as long as they bring me tea in bed I can live with it. I have spent years caring for her in different ways with her PTSD and depression issues. ( For example, I am on tamoxifen. They treated her pain with radiation, and they treated the cancer in the lining of her brain with radiation as well. I have limited support from my brother, as he is busy co-parenting with his ex-wife and working full-time as a Police Officer during a global pandemic. They just don't know much yet. Well this week she was having really bad pain … Press J to jump to the feed. About half of the patients with skeletal metastases developed femoral involvement, usually bilateral. Metastatic breast cancer is still considered an incurable process, but the division into molecular subtypes has led to improvements in care and facilitated a personalized management approach. She'd like to know how long she has, but one Oncologist said it can be 9 months, and another said 2-10 years. She has only met my mom twice in person since her diagnoses which is difficult too. Many patients now live 10 years or more after a metastatic diagnosis. Caregiver. I can't find much on people who have survived and lived a normal life. Cancer and its treatment represent major stressors requiring that patients make multiple adaptations. In 2013, she learned that the cancer had recurred in her spine and other bones. Reddit; Wechat; Abstract. There is a support forum over at community.breastcancer.org for those affected by breast cancer and their care givers. Metastatic breast cancer. It's best not to think about the future at this point, and to focus on making it through treatment and trying to get as much joy and laughter out of each day as you possibly can. My mom has lived alone for years, about 15 minutes away from me. Press J to jump to the feed. I especially think of this when I hear that a friend with my type of metastatic disease has passed away,” says Shirley Mertz, chair of the Metastatic Breast Cancer Alliance. What is certain is the treatment - surgery, chemo, radiation. The last five months have been nothing short of life-changing. I'm sorry about your friend. The unfortunate reality is that cancer does not always have a clear cause, sometimes it just happens for no good reason - even in young people (I was only 23 when diagnosed). She even got a check up a few months ago with an all clear. I find myself battling emotions of anger and frustration vs. happiness and joy to spend these last moments with her. She's lucky to have someone concerned about her - I would take cues from your friend in terms of how much support and information she needs from you at this time, New comments cannot be posted and votes cannot be cast. I was diagnosed with metastatic breast cancer in April. Financial toxicity due to the direct out‐of‐pocket costs of care is central to patients' value equation, 1-3 yet indirect costs, such as time spent receiving care, are understudied. In the last 15 years, a large number of new agents have entered clinical use, a result of the dramatic increase in our understanding of the molecular underpinnings of metastatic breast cancer. I also hate "pink". She could absolutely live a long life, but it probably won't be "normal" in the same way that someone who has never had cancer is normal. Certain impending femoral fractures can be presaged, and in these patients prophylactic internal fixation has reduced the incidence of pathologic fractures in femora so affected by metastatic disease from 32% to 9%. Clinical Trials: The NCCN recommends cancer patient participation in clinical trials as the gold standard for treatment. Blood tests might show some but I don't think any breast cancers show up in the blood. I took her home from the hospital that night with a pharmacy of her own to get her pain under control, some food for a few days, and a long list of phone numbers to get started making appointments. Cancer and its treatment represent major stressors requiring that patients make multiple adaptations. A life-prolonging drug is being fully funded for New Zealanders with advanced (metastatic) breast cancer, saving patients thousands of dollars and ultimately giving them more time. She has been my rock growing up, always proud, always boastful. Close. Reddit. As you mentioned, there is no cure for metastatic breast cancer. This reddit is for the discussion of cancer, cancer related news, stories of survival, stories of loss and everything else associated with the disease. Everything helps. The Internet is full of people who can't tolerate it. When cancer cells travel from the breast to the bones or the lungs and form tumors, these tumors are still considered breast cancer cells and not bone or lung cancer. My absentee father spent the majority of his time working hours away, and only coming home on weekends to clean the pool and see his friends. Metastatic Breast Cancer Treatment and Research News from Patient Empowerment Network on Vimeo. Chemo does nothing in the brain for breast cancer, and rads at best delay a bit. The primary goals of treatment focus on palliation of symptoms and improvement in overall survival (OS). Press question mark to learn the rest of the keyboard shortcuts, breast cancer 2015. cholangiocarcinoma 2019. March 16th, 2020, my mom was diagnosed in the ER with Metastatic breast cancer, spread to her lungs, spine, pelvis, ribs, neck, and the lining of her brain. Reddit; Wechat; Abstract. But that doesn't mean she can't be happy. But the doctors are right - when it’s in the brain the prognosis is short. No surgery, no chemo other than the oral hormone that is slowing the cell growth. ) patients tend to speak up out of respect for the palliative treatment of metastatic breast cancer not... Thank you for the palliative treatment of metastatic Mucinous carcinoma into how an individual cancer will react who. 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